Saturday, January 7, 2012
Just Try to Change a Surgeon
Though doctors' medical licenses generally indicate permission carte blanche from governing medical societies to practice both medicine and surgery; it is generally accepted that surgical procedures will be of a limited nature; it is given to the individual staffs to mandate which procedures and under what conditions an individual doctor may perform an operation. A surgeon may not just walk in to an operating room and perform an appendectomy, e.g.,without his credentials having been been closely scrutinized by a committee of his peers.
Hammering out these rules caused many hard feelings especially when turf battles were involved. A surgeon may say, "I've been taking out tonsils or appendicies before you were born. Why must I stop now?" The answer is easy: he need not stop. He must just prove his qualifications..
I remember one particular surgeon who was irate when the head OR nurse stopped him at the operating room door and refused him admission. Our staff president asked our pathologist along with a significant committee to review the surgeon's previous 10 appendectomies. Tho' each case was diagnosed by the admission surgeon to be an "acute appendicitis," in actuality only one showed evidence of infection. It was further made clear that the surgeon did not understand the disease as he blatantly wrote in the chart, "Schedule for appendectomy in 2 weeks when I return from my vacation"; surely at least one of the appendicies would have ruptured during that 2 week period if the diagnosis were correct. The reviewing committee decided to require the admitting surgeon to obtain a consultation on every new case of suspected appendicitis. Result? He gracefully stopped treating patients with abdominal pain.
Problems concerning surgical privileges generated much hostility and were a bane of contention in the opening months of the Aliquippa hospital. To the credit of the Aliquippa surgeons and to those general practitioners who for many years had included minor surgery as their domain, Final decisions were, eventually assigned to, board certified surgeons. The very loose rules acceptable for years to the older staff at Beaver County's three hospitals were summarily overturned by Aliquippa's Staff and soon adopted almost overnight in the three other county hospitals. It was not only a significant advance in medical care but also the prevention of potential malpractice suits.
It took longer to eliminate "ghost " surgery. A "surgeon" would be gowned as he said "hello" to his patient at which point another surgeon unbekownst to the patient would walk in and perform the operation. The referring surgeon would collect a major portion of the fee.
“You’ll make no friends serving on the Quality Control Committee,” my brother, Jerry, cautioned me. It was to be the first of its kind at the Aliquippa Hospital. At Jerry’s hospital tempers raged during their first attempts at quality control; a couple of meetings ended as members stormed out.
My reaction? “What! A Harvard man shirking the responsibility of teaching colleagues and protecting patients?” “It’s not arrogance,” I mused. “Rather a solemn obligation to my profession.” Whatever my noble or immodest motivations, I let myself be maneuvered even to the committee’s chairmanship. Jerry wished me, “Happy hunting.”
In truth at our first meeting I successfully sidestepped one land mine after another, maintaining a full complement of friends. It could just as easily have gone otherwise.
At first glance a layman or a physician-reviewer might not fault the first patient record to be reviewed. On the patient’s history page Larry, the orthopedic surgeon, had written: “This forty-five year old male came to the E.R. with a fractured femur.” End of history. Then on the physical examination page: “There is marked swelling and deformation of the region of the upper right thigh. Heart and lungs, normal.” On the pages meant for progress reports Larry wrote: “Performed closed reduction of femoral fx under gen’l anesthesia. Cast applied.” And lastly, three days later: “Patient walking on crutches. Home.” The chart furthered included the minimum blood tests required for giving a general anesthetic. Completely impersonal, not once did Larry indicate that the patient’s name was Carl.
“No problem here,” said a member of the committee.
“Not so fast,” said another member. “It just so happens that I’ve been Carl’s family doctor off and on and I know for a fact that he’s quite a heavy drinker. The history makes no record of this and I see the surgery took place four hours after admission to the E.R., time enough to obtain liver function tests. None were done.”
The first physician, who thought the chart passable, minimized the criticism. “Carl got through the surgery well enough. What’s the problem?”
“C’mon. Though you’re right, we’re not here to whitewash our colleagues. The surgery was successful but if the history of alcoholism had been elicited and if liver function tests had been performed, a different anesthetic might have been indicated. And you know what else? Mention is made in the nurse’s notes that Carl fractured his leg when he ‘fell down the stairs at home.’ No written comment by Larry. Listen. I know this guy’s son. He’s a violent kid who’s always fighting with his Dad.”
“So, you’re saying that the chart is lacking in liver function tests and information as to how the fracture occurred,” I summarized.
“I’m saying that as much as I like Larry, apart from making the right diagnosis, he did the work of a carpenter. I hate to make an example of him but I got out the hospital record of two years ago when I admitted Carl for pneumonia. Look at what I wrote on the discharge summary: ‘1. Pneumococcal pneumonia. 2. Chronic alcoholism. 3. Aortic stenosis, possibly from rheumatic heart disease.’ Did Larry ask the record room for old records? Of course, not. ‘Heart and lungs, normal’, my arse. Any second year medical student would have heard Carl’s heart murmur.”
I added fuel to the fire. “I doubt that Larry had ever sat down with Carl to ask about work-related financial concerns – nor did he call for a social service consult. Furthermore I would have given him a gold star if he had verbalized the known myth in patients’ minds that equates a fractured leg with impotency. So, what are your recommendations?” I asked, looking at each member of the committee.
Larry’s critic spoke up. “Well, I agree that the outcome was satisfactory. But I think Larry fulfilled only half of his responsibilities. No disciplinary action is indicated but I believe that the minutes of this review should be given to him. He’ll be mad as hell. Put him on the committee next year.”
With a unanimous vote we did approve a recommendation that charts of all previous hospitalizations be provided the attending physician as expeditiously as possible.
That’s not the end of the story. After receiving our report, Larry asked to be invited to the next meeting of our committee. More accurately, he asked for an immediate opportunity to face his critics. We accommodated him.
“What do you guys want from me? You all trust me with your orthopedic patients. Dave, I operated on your cousin’s knee and Jim, you let me operate on your wife’s back.”
I called a halt. “Hold it. No one has challenged your surgical competence.”
“Well, at least, thanks for that. Okay. Let’s go point by point. Carl’s alcoholism. Listen, he eats three meals a day and is as strong as a bull. The anesthesia was brief, no more than fifteen minutes. I set the fracture and took an x-ray to see if all was in place and finish. There wouldn’t have been any ill effects even if he had alcoholic cirrhosis. You may not know it but the anesthesiologist hasn’t had a great deal of experience with the new less liver-toxic agent. And if Carl wants to announce that’s he’s a member of AA, that’s his privilege. Why should I write it in the chart for busybody eyes? It’s nobody’s business.”
The orthopod certainly had a point about privileged information. We all had struggled with this dilemma. I remember wanting one particular patient’s history to be complete; I felt smug substituting “sexual identification problem” for “homosexual,” hardly much of a ruse these days. In an effort to direct others involved in the patient’s care I had divulged privileged information.
As chairman of the committee I took the liberty of concluding at the point: “I find little or no fault with your reasoning. If no one disagrees, let’s move on.” One hand went up.
“Okay. So I missed the heart murmur. As I said, Carl is as strong as a bull. If he could run up three flights of stairs, I couldn’t care less if he has a heart valve problem. It’s true that if he had had an open wound, I would have known better to prescribe antibiotic therapy to prevent endocarditis. In that situation I might well have been negligent. So what do you guys want? That I have an expensive medical consult on all my cases?”
A committee member took me, a medical consultant, off the hook. “No, you have a good track record for using consultants. But if you had taken the time to review the discharge summary of the previous admission, you would have been a lot farther ahead.”
“No disagreement there and I do like your recommendation that old records be made available with all due haste. You guys earned your keep with that one.” (He was being sarcastic since he knew we received no compensation for the committee’s work.) “As to how Carl broke his leg, I took him at his word that he tripped on the stairs. If his son pushed him, that’s between them.” The reader must remember this was in the 1970s before doctors accepted the responsibility for preventing violence in the home. None of us in the room was sensitive enough to take up the gauntlet.
“Lastly. ‘Sexual impotence?’ You got to be kidding! No patient is ever going to admit he’s worried about that.”
Again, none of us was equipped to give a lesson in the psychodynamics of trauma. All I could do was to say, “Well, maybe once in awhile you might just ask.” And I did add the well-known adage that “the patient knows how he feels but not what he’s got; the doctor knows what he’s got but doesn’t know how he feels.”
“So now the committee will recommend routine psychiatric consultation on all my fracture cases?
I closed the meeting thusly. “I’m in line to be Staff President next year. You can make that question your first agenda item as the new chairman of the Quality Control Committee.”
Years ago I took a course on “Psychiatry for Internists.” It was given by a friend, Bob Plesset; I enjoyed it thoroughly. After the last session, I thanked Bob and added that it would be wonderful if he could repeat the course, but for an audience of surgeons. He replied, “Listen, Dave. If I have emotional problems, I’ll go see my internist and if he can’t help, I’ll go to a psychiatrist. But if I have a surgical problem, I want to be operated on, not by someone who will waste precious anesthesia time by deliberating on all the implications of what he’s doing, but rather by the best man for the job, an out and out bastard.”
Maybe we should have left Larry alone. If Dr. Plesset were right, we would have achieved nothing by trying to change him. Who knows? If successful, we may have created an impotent surgeon.
Tuesday, November 8, 2011
Are You Really My Brother?
It was Hanukah 1984 and we had been living in Israel for three months in a one room apartment in what is called an "Absorption Center", a residential facility for new immigrants. Arieh Dulcin, the Chairman of the Jewish Agency, was addressing us new
Israelis. My Hebrew comprehension was
poor but with the help of Marcia and others around me, I understood that
something momentous was unfolding in Israel . “Top secret,” was Dulcin’s description and
yet he continued to speak of “Ethiopians” and “mass aliyah” (immigration
to Israel ). Dulcin was probably not the first to leak
this story. In the next few days we read
in the newspaper that over 7,500 Ethiopian Jews had arrived in Israel
during the previous few weeks. Many had
walked hundreds of miles across desert terrain with little more than the
clothes on their back. They crossed the
Ethiopian border into Sudan
before completing the next leg of their journey by airplane. Sadly, “Operation Moses” was aborted by the
Ethiopian government when their complicity with this exodus was made public;
they feared the wrath of the Arab world.
In May 1991 another 15,000 flew from Addis
Ababa to Ben
Gurion Airport ,
planeload after planeload arriving within a period of thirty-six hours. Two more new Israelis arrived than took off,
babies born in flight. Israelis were
proud to be able to demonstrate that all Jews are brothers independent of color
and culture. They flocked to the
temporary housing centers bringing clothes, blankets, kitchenware, food, and
toys. This is not to say that many
problems of absorption didn’t arise soon thereafter but those initial days were
indeed intoxicating.
The woman named Miryam who walked into my
office one morning in 1992 had been twenty-seven years old in 1984 when her
family gathered in a small village near Addis Ababa . Accompanied by her mother, her husband, and
four children and a number of relatives and friends – a total of fifty people –
she set out on a 350 mile-walk to the Sudanese border; it took eight
weeks. On the way they experienced the
atrocities and hardships inflicted on similar groups: robbery, rape, looting of
their meager household goods and jewelry, hunger, sickness, including malaria
and tuberculosis, and even death. Her
mother died, as did her baby after two days of a raging fever. They buried them in shallow graves. The somewhat obese, stately patient who now
faced me, had regained the thirty pounds she had lost during the trek.
Miryam was primitive in appearence, dressed
in a brightly multicolored dress with a woven, rope tied belt. Her skin was light brown, her hair black with
strands of white. Most striking and
distracting were the numerous linear, blue tattoos over her face, across her
forehead and along her cheeks. I was
most unsettled by the tattoo under her lower lip; it was a Christian cross.
Accompanying Miryam was an American Israeli
social worker, Beatrice. Before I could
begin my consultation I had to have the mystery of the cross resolved. In English I asked Beatrice about it. The answer disheartened me. It was to ward off potential rapists who
would not molest a Christian.
The three of us shook hands, the American
with a firm grasp, Miryam with a few limp fingers. Her referral letter indicated that she was
one month after surgery for thyroid cancer.
I was being requested to use radioactive iodine to eradicate any cancer
cells the surgeon’s knife may have missed.
I asked the relevant questions to establish a full picture of her health
and family situation. Miryam was soft
spoken. We constructed our Hebrew
sentences slowly; her vocabulary was broader than mine.
At age thirty-four she now had five children,
two of whom required special schooling.
Her husband, older by twenty years, was working as a gardener on the
hospital grounds. I had to be certain
that she wasn’t pregnant and to make clear to her that she mustn’t become
pregnant for the ensuing six months.
This was to prevent radiation to a fetus from the radioactive iodine,
which could totally destroy a fetus’s thyroid.
She nodded unconvincingly that she understood. I was somewhat relieved to learn that a
normal menstrual period had begun the previous day.
At
that point I indicated that I wanted to examine her briefly in reference to the
thyroid status. She made the typical
sabra gesture with the waving of her five vertically extended fingers, meaning,
“Wait a minute.” She leaned over to
Beatrice, appearing to be asking a question.
I couldn’t make out the words but Beatrice flashed a constrained smile.
“What does she want?” I asked.
“She wants me to find out if you’re Jewish.”
Then I too, smiled but my unspoken reactions
varied from “Such chutzpah (impertinence)!” to “What a historical
moment!” How much more significant was
Miryam’s inquiry in light of the trauma inflicted on the Ethiopian Jewish
community by Israel ’s
religion ministry. Despite ample oral
confirmation of their Jewish ancestry, individual Ethiopians were being
required to undergo mikva (ritual immersion) to establish themselves as
legitimate Jews. There were instances of
suicide by young couples who were being forced to undergo this conversion
procedure, humiliating to them, before being granted a marriage permit. A sit-down demonstration was held on Yom
Kippur 1985 opposite Hachal Shlomo Synagogue, the seat of rabbinic power in Jerusalem . This was near the synagogue where Marcia and
I were praying; we visited the protestors to express our support. The Rabbinical Authority would not
relent.
“Are you really my brother?” I answered in the
affirmative and authenticated by Beatrice satisfied Miryam. Our relationship over the following years was
warm and trusting. Between her shyness
and my reticence to invade her privacy, I developed only a superficial
understanding of her life with one exception.
Two years after her first treatment, Beatrice
required a second dose of radioactive iodine.
Again came the discussion regarding avoiding pregnancy. Miryam now had a sixth child, one year
old. I learned that Miryam could not
tolerate birth control pills and wouldn’t use a diaphragm. An intrauterine coil had caused profuse
bleeding. Her husband, who would not
accompany Miryam to my office, had refused to use a condom, to try the rhythm
system, or to consider “withdrawal.”
Tube tying, whether for husband or wife, was repugnant to her
husband. I was stymied. That left only abstinence. Since there was no urgency to make a decision
(her cancer was extremely slow growing), I suggested, “Go home and think about
it.”
Miryam
came back two days later requesting a note from me to be addressed to her
husband, ordering him to abstain from sexual relations with her! Possibly I should have consulted an expert in
Ethiopian culture for I was thinking as an American who wanted to die only of
old age and not at the hands of an irate husband. I declined the request and concluded with,
“We’ll go ahead with the treatment. Do
the best you can to avoid becoming pregnant.”
Successful she was as was the therapy. She remained well, with one more child,
during the next four years prior to my retirement.
We met one more time two years later when I was visiting my former
department. There was a difference in
her appearance, which I couldn’t at first define, that is, until Miryam,
smiling, pointed to her chin. The cross
was gone with only a faint stain remaining.
Miryam’s absorption into Israel
was now complete. We indeed were family.
Tuesday, October 25, 2011
Sicker Than I Thought
It never occurred to me when I sat at Rose’s bedside
that she would be any different than the scores of patients I had treated with
radioactive iodine for an overactive thyroid.
And as with the others, it wasn’t long before her tremulousness, typical
of the disease, also infected me; I felt my body trembling in rhythm with
hers.
It was 1950. I
had accepted a fellowship in radioactive iodine research at the Beth Israel
Hospital in Boston without even knowing what radioactive iodine was. Few academicians anticipated that this
isotope would herald the field of nuclear medicine. That it would play such a significant role in
my life was hardly in my mind; I initially thought of the job merely as a
stepping-stone to an appointment as a Resident in Internal Medicine. In fact it was to lead me to my wife and to a
successful move to Israel . But that’s another story.
Rose K., age thirty-five, looking fifty-five, was a mother of
three children; the youngest was five years old. Her husband, age forty, hadn’t been employed
for several years because of unexplained bleeding in his extremities – more on
this in a moment. They lived in a
three-room apartment in a public housing project, subsisting on welfare checks
and food stamps. One child had a seizure
disorder, another, asthma. Rose had
little reason to smile. On the contrary,
she was haggard, appearing malnourished with cracked lips and a
vitamin-deficient, smooth, red tongue.
Her gaunt cheeks sagged, as did the skin of her arms, indications of a
recent twenty-pound weight loss. Her
skin was warm and her pulse, fast. All
of these signs were typical of patients with hyperthyroidism, an overactive
thyroid. But why didn’t she have
protuberant eyes and an enlarged thyroid gland, other findings typical of this
disease? I would soon learn the answer.
At this point it was obvious that I would have another
candidate to add to my growing research study dealing with the use of
radioactive iodine in the treatment of hyperthyroidism. A few more and a pioneer publication could be
expected, maybe even a presentation at a national medical meeting. This sequence didn’t unfold quite as I
imagined it would.
I explained to Rose the nature of the radioactive iodine test
to be performed the next morning. It
would measure the function of her thyroid gland, information essential for
arriving at a proper treatment dose of radioactive iodine. I even anticipated this treatment by
explaining that radiation from the dose I would give her would gradually shrink
her gland over six to twelve weeks and, thereby, reduce its function. Most patients would be cured by the end of
that period.
The following morning Rose was brought to my lab in a wheel
chair – her muscles too weakened to permit walking. I gave her a drink of a small dose of
radioactive iodine. The following
morning she returned for measurement of the amount of radioactive iodine
collected by her thyroid gland. In
normal patients the answer would be 15-30%.
In a patient with an overactive gland it would be 35-80%. Imagine my dismay when Rose’s measurement was
1%. First I blamed my technique. Had I given her water instead of radioactive
iodine? The presence of a significant
amount of radioactive iodine in a urine sample discounted that
possibility. Next I blamed the
equipment. I checked the electrical
connections on our homemade, primitive set-up.
Finally a successful check of a known quantity of radioactive material
proved that I had to look elsewhere for the answer.
After Rose returned to her room, someone suggested that she
might have been taking diet pills and just neglected to tell us. In that era diet pills contained thyroid
extract in quantities sufficient not only to block thyroid function (and reduce
the entrance of iodine into the gland) but also to cause adverse effects on the
body, which simulate the findings of an overactive thyroid. We called the unit
and had the intern ask the patient if she was taking diet pills. The intern spoke with me. “Rose appeared irate and emphatically denied
this.”
I thereupon requested the nurse to send Rose back to the lab
for “retesting.” During the time that
she was with me – I feigned a change in technique for measuring her thyroid
activity – the nurses inspected Rose’s bedside table and locker. Lo and behold, two bottles filled with
thyroid pills were found! The nurse
phoned with this startling finding. The
mystery of hyperthyroidism associated with low iodine uptake was solved, as was
the absence of protruding eyes and an enlarged thyroid gland. A dose as little as four tablets a day would
mimic hyperthyroidism.
I took Rose into a private office and confronted her. “Rose, tell me about the bottles of thyroid
pills in your belongings.”
At first she looked at me with scorn. I suppose it was when she realized that I
cared about her, that she broke down, sobbing, “I want to die.” In the ensuing hour her tale unfolded. More than depressed, she was angry – angry at
life but more specifically, at her husband.
“He’s never held down a job. He
just sits around all day listening to the radio or studying a racing form. Of course, that is, when he’s not in the
hospital.”
“Why,” I asked, “does he need to be in the hospital?”
“‘Need to be in the hospital?’
That’s funny. He’ll kill me if I
tell you. Oh, what the hell! I told you that he has bleeding in his arms
and legs. Your blood department has been
struggling to diagnose a rare bleeding disease.
Well, there is none. He just
bangs his legs against the toilet bowl and his arms against the sink until they
are black and blue. He loves being
fussed over by the doctors and nurses.”
“But, Rose, what’s this got to do with your taking thyroid
pills?” She had admitted to taking
fifteen to twenty a day, a dose that, if continued, would eventually kill
her. She knew it. I suggested that, “there are faster ways of
killing yourself.”
“That’s the point. I
wanted to make my husband suffer as he watched me dying, not that he could care
much once I’m gone.” I was now getting
over my head into psychiatric waters that called for the involvement of a
psychiatrist; this I arranged for both Rose and her husband. (The latter’s hematologists on first hearing
of the self-inflicted lesions wanted to kill him for wasting their precious
time and resources.)
Putting a name thyrotoxicosis
factitia on Rose’s condition didn’t help except as the title of her case report that was published in a medical journal a year after our first
encounter. Rose was checked in the
thyroid clinic ten months after stopping thyroid pills; her gland function was
normal.
It is a sad commentary that neither my memory nor the article gives any
indication of the family’s psychiatric follow-up. It’s not conceivable that I cared only about
getting my name in the medical literature.
Or is it?
Saturday, October 22, 2011
A Doctor in the Family
This chapter could be titled mea culpa or the
Hebrew parallel, “al het,” asking forgiveness “for the sin ... .” Though not sealed in any oath equivalent to
that of Hippocrates, an admonition not to treat one’s own family is nearly as
binding. And yet, many times there were
extenuating circumstances, which placed me in a compromising role I could not
avoid.
Take for example my treating my wife, Marcia, for “the
flu.” In the fall of 1954, we were living
in Boston while I began a two-year fellowship in internal medicine at Lahey
Clinic. Marcia developed symptoms typical of an upper respiratory infection:
low-grade fever, sore throat, coryza, and a non-productive cough. I listened to her lungs with a stethoscope
and heard no abnormal sounds.
The following day when her temperature rose and her
cough became productive, I threw in the towel and called a seasoned
internist-colleague. Within a couple of
hours he examined Marcia and heard moist crackles – rales – in one of her
lungs. “I believe Marcia has pneumonia,
Dave. Let’s take her to the hospital for
a chest x-ray.” And, of course, the
diagnosis was confirmed; Marcia was hospitalized and quickly recovered on
penicillin therapy.
It is possible that the “rales” may have developed
between the time of my exam and my friend’s.
More likely, thinking wishfully, I tuned them out. And therein lies the inescapable truism: as
physician to one’s family, the doctor’s judgment is faulty. He will go to the extremes of denial, wishing
away any abnormal findings. Accordingly this relationship is to be avoided
whenever possible as will be re-enforced by other examples that follow.
I was one of three internists who treated heart
patients in Aliquippa. The other two are
now dead so I can freely claim that I was the most experienced and up-to-date
with newly developed techniques. It
therefore seemed logical to me to be my mother’s doctor when she developed
heart trouble. The relationship worked
well for several years until one day in 1971 when my mother was 84 years
old. Over the telephone I could hear
that she was in severe congestive heart failure. I called an ambulance; we arrived at Mom’s
house almost simultaneously. We sat her
up in the ambulance stretcher; this gave some relief. As soon as she was in a hospital bed, I began
the then state-of-the-art therapy. First
order of treatment was to put an oxygen mask on her. I then applied tourniquets to her legs and
arms, which lowered the work of her heart by reducing the circulating blood
volume (not to worry, the tourniquets were removed at set intervals so that no
extremity went without circulation for too long). This should have worked. A nurse administered an injection of morphine
to try to relax my mother’s frantic breathing efforts. I then gave an intra-muscular injection of a
mercurial diuretic again to reduce the fluid, which was backed up in her
lungs. Lastly, I injected intravenous
aminophylline to relieve bronchospasm. I
won’t say I was proud of myself but I was self-consciously aware of the nurses
watching me take control of the situation with such dispatch.
The only problem was that nothing I did seemed to
improve my mother’s dire condition. I
was at a loss for something more to do for my mother who would soon die. A “code blue” announcement went forth over
the loudspeaker system, which would bring more help. I don’t know who was inspired to initiate the
call but within minutes in rushed Dr. Horto, our Turkish anesthesiologist. He assessed the situation in less than a
minute and within another, without asking my permission, inserted a tube
through my mother’s mouth into her trachea.
Immediately he began pumping oxygen under considerable pressure. This would force fluid from the breathing
spaces in her lungs into the blood stream, making room for exchange of oxygen
and carbon dioxide. Within two to three
minutes my mother’s breathing was easier and much less bubbly. Her previously blue nail beds began to pink
up, indicating improved oxygenation of her tissues. (If my mother had been fully aware, removing
her meticulously applied fingernail polish to expose the underlying innate
color would have angered her.) Within
five minutes of Dr. Horto’s treatment, Mom opened her eyes and smiled at
me. Because of the tube, she couldn’t talk
but it was evident that she was out of trouble.
Within ten days she was fully mobile and was discharged home.
Where had I failed?
It was obvious that I couldn’t bring myself to carry out the most
significant therapeutic measure on my own mother; it was just too
invasive. Mom lived reasonably active
another three years until her heart failure returned, that time not to be
reversed. Within hours she was dead. As she was dying I spoke with my brother,
Jerry, a superb physician, who asked, “Are you ready to let go?”
I replied with a choked, “Yes.” I would not have been three years earlier.
The issues are clear.
With my wife, wishful thinking blunted my diagnostic acumen. With my mother aggressive action on my part
was unthinkable, too disrespectful, too unfilial. My role as a physician was subverted.
At least I did act appropriately, albeit harshly, when
Mom at age 82 caused a traffic accident in which her car was nearly totaled;
she got out of the car and, adjusting her hairpiece, asked a passerby to call
her son. It was painful for me to take
the driver’s license away from my mother but I gritted my teeth and did it. (Ff
turnabout is fair play, my children did this to me last month!) She was less
accepting when two years later, I took control of her checkbook.
My daughter Amy was not always easy to read. As I look back on her short life, I have to
admit that I, we – Marcia and I – more than once questioned her judgment as
when at age six, she shouted that a suitcase had just fallen off our car
luggage rack; 100 miles later she was vindicated. So when she rather casually claimed a broken
leg from what I witnessed as a rather gentle fall while skiing, I had her sit
while the rest of the family finished our ski afternoon. To placate her when we arrived home, I took
her into the x-ray room of my office and x-rayed her leg. I couldn’t believe the result: a long spiral
fracture of the tibia. I was in no way
exonerated when both the ER nurse and, subsequently, the orthopedic surgeon
asked, “Which leg?” Fortunately no harm
came to Amy by the several hour delay in my making the diagnosis, not even
significant pain. Both of these
incidents did give her leverage in subsequent disagreements with me.
A judgment error for which I probably will never forgive
myself also concerned Amy. It was the
morning after we had retrieved her from Hampshire College
in Amherst , Massachusetts . Afflicted with manic depression, Amy had made
superficial cuts on her wrists. She
called us from the infirmary to say that she felt like jumping out of a
window. Marcia was at her bedside within
hours while I arrived some time later by car.
Immediately on our return home we made an appointment for the following
morning with a psychiatrist in Pittsburgh ,
thirty miles away. That morning Amy was
acting strangely; that was the only description I could apply. As we got into the car, she was acting
somnolent and “acting” was what we thought was the explanation. I wavered between going directly to my
hospital one minute away and proceeding on to Pittsburgh , an hour away. I elected the latter.
By the time we got to the psychiatrist, Amy was in a
deep slumber. He ordered us to proceed
directly to a nearby hospital where remnants of sleeping capsules were
aspirated from her stomach. Amy lay in a
coma for two days during which time I didn’t budge from her unit; I had to be
there when she awoke or if further complications were to develop. She did eventually recover; I didn’t. It is obvious that my judgment was terribly
impaired. How could I think it was just
another of Amy’s tricks? Or was I afraid
to confront the staff of my hospital –
where I was "infallible" – with the reality of my mentally sick
daughter?
The most recent incident of questionable professional
conduct occurred in reference to Marcia’s resolve to donate a kidney to her
niece. The final decision regarding her
acceptability and ultimately the surgery were in the hands of a team in New York . She received instructions for arranging a
preliminary battery of tests here in Israel . In addition, forms for a complete history and
physical examination were to be completed by a doctor. Marcia had no family
doctor and certainly no one could document as complete a history and as
expeditiously as I. I therefore
undertook the responsibility. I
assiduously performed each examination as objectively as possible. It took
concerted effort to fight the desire not to find any abnormality. Certainly I
could not overlook any finding that might jeopardize Marcia’s life should she
undergo the nephrectomy. The only
important finding was borderline high blood pressure. I was not concerned but
reported it accurately.
When the surgeon who was responsible for Marcia
approached her, it was obvious that he was riled up over something. Immediately
Marcia saw him as an adversary who would prevent her from saving her niece’s
life. “We never use a sixty-six-year-old
donor unless it’s for her own child. And does your husband not know how
unethical it was for him to do your history and physical?” Marcia listed my
professional qualifications, all irrelevant.
By the time the surgeon took Marcia’s blood pressure,
she was in a rage and her blood pressure proved it. “Your husband lied! Your
blood pressure is not 160/80. It’s
200/100!”
“Do you think my
husband wants me to die? Let someone
else take my blood pressure in another hour.” She was terrified of further
antagonizing him, lest he disqualify her as a donor.
Well, the surgeon was not entirely wrong about my
completing Marcia’s examination. But not
only did he not seek an explanation, he didn’t suggest having a colleague redo
the exam. Eventually she went through
the surgery and with no untoward effects, her niece was restored to good
health, and a year later the surgeon was looking for a new job.
Every once in awhile when I’m berating myself, I wander back in my mind to
1967 to our family trip to Sunday, October 16, 2011
The Art of Dying
I
cringe when I hear, “He died such a nice death!” This description is an oxymoron since I never
think of death as being nice.
Modifying the expression to “dying nicely,” that’s another matter. This implies patient equanimity after a full
and long life, freedom from pain and other distressing symptoms, the energy to
put one’s affairs in order, a support system of family and friends, and time to
say goodbye.
I
remember well the description of the death scene surrounding a national officer
of a Jewish organization. I had
witnessed his statesman-like qualities as he chaired board meetings and
exasperating plenary sessions of conventions.
I also had an opportunity to get to know him personally on a tour of
Israel. When his inevitable death
approached, he spent his days in bed at home, bringing order to his personal
affairs and involvement in numerous civic and charitable organizations. He cheerfully greeted numerous well-wishers,
consoling them as much as being consoled by their visits. He did not exhort God to change the evil
decree. From all that I heard, he was as
much a mensch while dying as he was while living.
Without
a statistical survey to corroborate my observations, I would say that the
process of dying seldom matches what I’ve just described. In defense of others whose deathbed scenes
weren’t so peaceful, my friend’s mental functions continued intact and his
symptoms were kept under control without clouding his intellect. This contrasts shaprly with a patient of
mine, a seventy-three-year old merchant, who was terrified of dying. He wouldn’t close his eyes for fear of not
waking up and refused sedatives for the same reason. He railed against God for punishing him with
an agonizing illness. He refused
psychiatric counseling and was disdainful of his rabbi, even refusing to allow
him in his hospital room. He struggled
to his last breath, all of which added to the suffering of his wife and
children.
And
being a cleric did not sustain another terminal cancer patient. Pain from prostate cancer, which had spread
to all his bones, was controlled with minimal dulling of his senses. It was ironic that this fifty-two-year old
priest would be asking me, “Why would God punish me? I’ve sacrificed my life to his service and
this is my reward?” Ill equipped to
enter a theological dialogue, I resisted the platitudinous reference to Job and
God testing his faith. I did give him an
opportunity to ventilate and I expressed my admiration of his contribution to
our community. This fell short of
relieving his religious turmoil.
Or
the Protestant minister who during an Easter sermon had said, “I can’t wait to
get to heaven and sit at the feet of my Lord Jesus Christ.” Seventeen years later at age seventy-six,
when he was suffering the ravages of untreatable lung cancer, it became time to
test his declaration. He failed
abysmally for he, too, was terrified of closing his eyes. I requested the patient’s wife to seek the
help of her husband’s pastoral superior but, like me, he also was at a loss to
bring solace to his colleague.
Then
there are the innumerable patients who are seldom awake as the large doses of
morphine that are needed to relieve their agony, dull their ability to communicate. Relief of pain dominates the entire process
of dying. Hopefully, conflicts were
resolved and goodbyes, tendered before this stage was reached.
Neither
patients nor their doctors have any control over the myriad scenarios by which
the dying process presents itself. Nor
does the patient’s psychological makeup always determine how he will react to
his particular scenario.
Clara,
a fifty-four-year-old schoolteacher, normally cheerful and stoical, lay dying
of inoperable widespread cancer, which had caused intestinal obstruction. Chemotherapy had failed months before. A plastic tube entered her nose on its way to
the small intestine. There were
intravenous needles in each arm, both covered with hemorrhages under the skin
from failed IV’s and numerous attempts to draw blood for laboratory tests and,
of course, there was a catheter into her bladder. This was not a scene one would call conducive
to equanimity. She and I had already
talked about relieving her intestinal obstruction symptoms by performing a
hazardous ileostomy so that the nasal tube could be removed, permitting her to
eat. Clara declined this, asking that I
let her die. “Please take out all these
dreadful tubes and let it end.” I told
her that without the nasal tube she would be in terrible pain and would soon be
vomiting feces; without the catheter, she would develop painful urinary
retention. On the other hand without the
intravenous solutions she would starve to death, usually a painless process,
taking about ten days. As though a judge
were offering her death either by the electric chair, by a lethal injection, or
by hanging, she made her choice. “Stop
the IVs.” The idea was intolerable to
the family and to the nurses who saw their role as nurturers. Finally, accepting the patient’s decision,
everyone consented to abide by her wishes.
Clara required little more than frequent mouth care. She became more relaxed knowing that her
travail would soon be over. She had more
patience for discussions with her husband and children. The onset of coma was gradual; she died in
her sleep from ventricular fibrillation.
An order “Do not resuscitate,” previously signed by the patient, was
honored.
Terminally
ill patients, particularly those who have witnessed the death of a family
member, fear uncontrolled pain. But
equally frightening is the prospect of suffocation. Medical ethicists debate whether or not
intubation (placing a plastic tube into the trachea to allow easy passage of
oxygen) falls in the category of “invasive” procedures for the patient who has
declared that nothing invasive be undertaken to keep him alive. In the case of John T. who was dying of
emphysema, it was doubtful that intubation would have done more than relieve
the exhaustion from the work required to move air in and out of his lungs. Watching a patient struggle for every breath
is a most unpleasant experience; for the patient it is a nightmare. John had smoked two to three packs of cigarettes
daily for forty-five of his sixty-five years.
A six-month attempt at reversing the disease by ceasing smoking at age
sixty-three came too late; his disease was irreversible. For a year he had managed to leave the house
carrying a canister of oxygen but in the last six months he didn’t have the
strength to get out of bed.
John’s
wife and children couldn’t get past their anger for his self-inflicted
premature departure from their lives. No
one shed a tear in his presence.
Meaningful communication hadn’t taken place for months. When it came time to consider helping John’s
breathing with an endotrachial or a tracheotomy tube (in his neck), no one in
his family could discuss the matter dispassionately. John, between strained breaths, expressed a
desire to die quickly and as soon as possible.
And yet when he and I sat alone to discuss this wish, he hardly
mentioned his fear of suffocating. “I
can’t face my family day in, day out. No
one talks to me. My kids hardly ever
visit me. You would think that they
would understand cigarette addiction and not treat me like a pariah. Everybody would be better off if I were out
of the picture.” I felt I earned my degree
that day when I arranged a consultation with a family psychotherapist. After three home visits not only had a
relaxed rapport developed between John and his family, but even his breathing
improved by a few, but significant, percentage points. Six months later John lapsed into coma and
died nicely at home surrounded by family.
Cousin
Saul, age sixty-three, a brilliant physician, fell into an altogether different
category of incurable illnesses shared by so many patients with a stroke or
Alzheimer’s disease. Saul’s stroke was
massive resulting in paraplegia and expressive aphasia. Though totally aware of his surroundings, in
no manner could he communicate with the hospital staff or with family. When my brother Jerry flew from Pittsburgh to California to visit
Saul, he couldn’t wait to leave the room for all Saul did was cry silently from
the frustration of not being able to speak.
Jerry compared Saul’s plight to that of a trapped animal. He wished that he were able to place a pillow
over our cousin’s face and end his agony.
In such situations all a patient’s preparations to face death soberly
and with dignity fail under siege by forces beyond his control. We onlookers breathe a sigh of relief when
the patient’s eyes are finally closed forever.
“Thank God, his dying is over.”
Too
seldom are Hollywood scripts adhered to. There are exceptions; these add beauty to our
lives. Take Janet M., a close family
friend. Wasting away from the ravages of
breast cancer, she designed her own home hospice situation before the word had
become a functioning concept. Janet lay
in her bed giving solace to her husband and children. She was able to handle with humor her
admonition to her husband to look for a second wife.
And
dear friend Beecie. She said to my wife,
Marcia, “I think it’s time to get my portrait painted.” She was referring to the joke concerning a
woman, who after her portrait was finished, asked the artist to add conspicuous
items of precious jewelry, earrings, a necklace, and even a tiara.
“But
why, if you don’t have any,” asked the puzzled artist.
She
answered, “I want to drive my husband’s next wife crazy looking for them.” Beecie didn’t mean it.
Then
there was Mary M., age forty-five, who astounded her physicians by persisting
free of symptoms despite widespread bone metastases. At the time of my frequent examinations we
actually joked about my helplessness (and that of my consultants) to influence
the inevitable shortening of her life.
Not deeply religious, she verbalized her curiosity about the afterworld
she was certain existed. Speaking to
Marcia, she said, “Keep your eyes and ears open. I’ll find a way to stay in touch with you. I’ll want to know about the books you’re
reading.”
My
Aunt Rose deserves honorable mention as an example of a strong life force
carrying her through what would have been insurmountable difficulties for the
average person. She suffered from blood
flow problems to her legs which would lead to their eventual amputation. In her
eighties she underwent by-pass surgery to improve the circulation in her legs,
delaying amputation by three years. When
gangrene developed in her toes, she accepted amputation of the foot and when
this failed, amputation of her leg above the knee. She was zealous with her exercise program;
within a few months Aunt Rose was walking with a prosthesis and a walker. She rarely missed a family function or a
Friday evening synagogue service. It was
only in the last week of her life six years after the first amputation, that
she became delirious as a result of gangrene of the remaining leg. She died within days after a second
amputation, six months short of her ninetieth birthday.
Without
entering the debate on assisted suicide, I can categorically state that the
most pleasant dying scene I have ever witnessed was Sara’s (described in detail
in Down with doubletalk to cancer patients in my memoir, By All
Means, Resuscitate). With no further
treatment available for her rapidly advancing cancer, she lay in her own bed
enveloped in loving care that only family and hospice could provide. Pain therapy was minimally effective but
fortunately did nothing to dull her mind.
Already having problems with swallowing and breathing, she knew that
suffocation was around the corner.
Paralysis in one arm would soon extend to all four limbs. She discussed every imaginable subject with
her family. With me she reviewed her
life story, her aspirations, and her satisfaction with the end-of-life plans
she had designed. She joked with us all. No one cried, not even at the moment Sara
swallowed the life-ending capsules; I had said goodbye an hour before,
reluctantly following legal advice not to accompany Sara to life’s exit.
The
expression “dignified death” troubles me.
In many instances it is the family’s dignity, which is offended by the
death scene. The patient may be beyond
concern for his appearance or the foul smells of his uncontrolled excretions;
we, his family, are. So we make frequent
diaper changes, bathe him and give mouth care, change his bed sheets and
pajamas, and comb his hair. Or if unable
to provide homecare, we choose the nursing home with the least offensive
ammonia odor. Since we are compelled to
give all respect to the body after a person dies, how much more so do we
demonstrate this respect while the patient remains alive.
End
of life decisions frequently are thrust upon us on an untimely basis. Heroic resuscitative maneuvers on a terminal
patient are instituted by well-intentioned emergency room personnel before
completely assessing the patient’s situation and before any discussion with
family. The urgency of the moment does
not allow time for perusing prior charts; the “Do not resuscitate” order lies
in limbo. But a red line has been
crossed. Discontinuing life supports is
more complicated than arranging not to begin them. The former may require a court order if
doctors aren’t in agreement with the family.
And at this point it is not the patient’s dignity, which is in jeopardy,
rather the family’s. Conflicts arise
among them over the decision to “pull the plug.” “For whose sake are we doing it? What’s your hurry? Are you impatient to end the dying
process? Are you concerned about wasting
our inheritance?”
I
was afflicted with these ruminations when my brother Jerry suffered a massive
stroke after coronary by-pass surgery.
MRI showed that a large, vital section of his brain was destroyed. It was almost certain that he would never
awake from his coma and if he did, the best we could expect would be an
existence like that which Cousin Saul achieved; Jerry had stated categorically
to me that he would never want that kind of life. The doctors agreed that supports should be
withdrawn. The only question was,
“When?” It was only day two of this final
illness. Jerry’s son asked that it not
be on his own birthday, which would be day three. What about my plane reservations taking me
back to Israel ,
which allowed only enough time for burial and the prescribed days of
mourning? Or Jerry’s wife Irma’s wish to
keep Jerry with her as long as possible.
All of us tried to be objective when we made the decision to detach
Jerry from the respirator. I, for one,
didn’t feel dignified in the process. Many
years later my discomfort remains.
So, we all, patient,
family, and physician, work to lessen the tragedy of death. The patient tries
to resign himself to the inevitability of his demise and to put his financial
and emotional affairs in order. His
family is obliged to share the patient’s reaction to death, to be able to
discuss their sorrow on losing him while not resisting his acceptance of
dying. Lastly, the physician must
broaden his role of healer to caregiver until the patient’s last breath. This requires learning to let go, listening
to the patient’s fears and desires, being receptive to follow whatever path the
patient requests within limits of the law, and on rare occasions extending
these limits. Each participant can then
be said to have acted with nobility and. dignity
Tuesday, October 11, 2011
Was it for Love or Money?
The last
eighteen years of my life in the United States were spent
shepherding the development and growth of the Aliquippa Hospital
cardiac care unit (CCU). Preventing
deaths of cardiac patients was an almost daily occurrence for me and my staff. Those were heady days as one medical advance
followed quickly on the heels of another, and consequently, death rate from
heart attacks fell from thirty to fifteen percent. If I wasn’t involved with each individual
incident, at least those I had trained were.
For the many hours of service to the unit, I
received no financial remuneration, not a nickel; at least not until the final
five years when I did receive a token stipend.
I won’t deny though that as the reputation of the CCU sprouted, so did
the size of my cardiology practice and my income.
Since Aliquippa
Hospital had no interns
or residents, almost nightly a CCU nurse woke me with a question about either
one of my patients or that of another doctor.
Three or four nights a week a visit to the hospital was necessary, which
made my living a few hundred yards down the road an advantage. From time to time my visit would entail a
time-consuming insertion of an intravenous cardiac pacemaker wire or a catheter
into a pulmonary artery to aid the treatment of shock. These visits were medically fulfilling while
frequently yielding significant fees.
Many times I asked myself, “Am I getting out of bed for the money?” And if it was for a non-paying patient, “Was
this one just to ease my conscience?” I
usually answered myself; “I’m doing it for the love of my work.” But I had to admit that the money and the
adulation of the nursing staff didn’t hurt.
There was no way to pass judgment on my motivation, that is, until I got
to Israel.
During the first four months of my aliyah (move to Israel ), I was
totally dissociated from medicine. My
time was consumed with the study of Hebrew. The memory of the previous eighteen
years of frequent night visits to the hospital remained pleasurable but finally
I experienced the joy of uninterrupted sleep – and obviously I wasn’t being
paid for that night’s sleep. For the
ensuing four months I worked an eight-hour day as a senior hospital resident
upgrading my skills in nuclear medicine. Subsequently I was appointed Director
of Nuclear Medicine at Wolfson
Hospital . The department consisted of one nuclear
camera, one technician named Shula, and me.
It was my task to build the department into both an active ancillary
service and a teaching facility. I encouraged
the appropriate requesting of nighttime emergency scans; their performance fell
to Shula and me. In time, since I had to
be present to interpret the nuclear scan, I excused Shula from helping me. I also routinely arrived at the hospital each
morning an hour and a half before Shula in order either to carry out quality
control measures or to begin a time-consuming patient study, all in order that
the day’s work would flow smoothly.
And now to my point.
I received a fixed salary with no extras for additional effort. More than that, after six months passed, I
received tenure; my job was guaranteed at least another five years, when I
would be sixty-five. I could have sat
back and done very little, even wander into work at ten in the morning and
leave at three. Nor would I have been
the first to take concurrent private jobs to earn more than my hospital
salary. Even though I didn’t need to
prove myself or answer to anyone, I never took advantage of any of these
perks. And for all my extra work hours
and the emergency night calls I received not an extra penny. A few colleagues praised me. Others called me a friar, a Yiddish
word meaning, “sucker.”
Again I ask, “In Aliquippa
did I get out of bed at night for the money?”
My continued zealousness in Israel indicates, “No.” And yet as I try to exonerate myself, I have
to admit that in Israel ,
whatever I did, including moving here and taking emergency calls, was
predicated on a strong Zionist urge to help build my new homeland. So I’m hardly off the money-motivation hook
yet.
Was I so conditioned by the capitalistic reward-for-work
ethic so that even after the reward was taken out of the equation, the work
habit persisted? If so, does that mean
that Israeli doctors raised in a socialistic society extend themselves less and
justify it because of their poorly compensated and under-appreciated
workday? I have no statistics. I can only assume that there is no difference
between us as to character and that the answer to the last question is, “No.” My daughter, Raina, who witnessed my medical
style while growing up in America but received all her medical training in
Jerusalem, validates that assumption as a tireless, underpaid Specialist in
Family Medicine.
In both my Aliquippa and Wolfson Hospital offices, I hung photographs of
my esteemed Boston
mentors. Was I afraid that some evil
spirit would emanate from them if I didn’t perform nobly? And I remember two of my Beth Israel Hospital
teachers who spent countless unpaid hours with me and other fellows during
evening and nights. We were the children
they never had.
In the last analysis let me be unscientific. I shall beat my breast no more. I conclude that I was and remain primarily
motivated by the love of my profession.
Sunday, October 9, 2011
Don't Put Off Till Tomorrow...
Those were exciting weeks as I anticipated the opening day of
my medical office. It was to be August 1, 1956 , eleven years
and ten months from the day I entered Harvard Medical
School and approximately
ten years since I first laid a hand on a patient. So much preparation in those years, acquiring
knowledge, developing skills, molding attitudes toward patient care, and
drawing up schematics of the form my medical practice would assume.
Georgia
took the bait. “It’s true that I felt
more relaxed after I spoke with you. Could
it be that’s why I improved?”
Taking a cue from my brother Jerry’s General Practice before
he went off to fight in WW II, I rented office space above my Aunt Sarah’s
jewelry store on the main street in Aliquippa . Adapting it to my physical needs required no
structural changes. At the entrance was
a combination secretarial office-waiting room, which led into both a
consultation-examining room and a room accommodating an x-ray machine. A closet became an x-ray developing room and
a bathroom. Sharing the waiting room with an adjoining lawyer's office reduced
my costs.
I had spent the month of July ordering office furniture and
medical and secretarial supplies including calling cards and personalized
stationary. One dilemma arose when it
came to deciding on a desk chair. The
corporation president’s chair was too ostentatious and expensive; I settled for
the vice-president’s model, also too expensive.
(I remembered the advice of a highly successful accountant who was under
my care at Lahey Clinic. We were
discussing my bleak financial situation as I approached entering private
practice. “Don’t borrow a small amount
of money from the bank; you’ll just stay awake at night worrying how to pay it
back. Borrow a large sum. You’ll sleep better knowing that you’ll have
to pace yourself over a long haul rather than repaying the loan quickly.” To wit, the lavish chair.)
The most costly item was the x-ray machine. Though I was a specialist in Internal
Medicine, my training included one year of gastroenterology during which I
became proficient in performing x-ray examinations of the gastro-intestinal
(GI) tract. One of my favorite teachers,
the chief of radiology at the Beth Israel Hospital in Boston, showed his
disapproval by ordering me out of his fluoroscopy room when he realized that I,
as an Internist, would be performing GI x-ray procedures. I rationalized my plans on the basis of the
absence at that time of a hospital and a radiologist in my town. At the outset of my practice a few physicians
became acquainted with me by sending patients just for an x-ray. The fact that Blue Cross Medical Insurance
paid handsomely for x-ray procedures years before compensating a doctor for his
consultation was of more than subliminal importance in those early hungry days.
Oh, yes, my in-laws paid for the x-ray machine -- my request as a substitute
for their furnishing our home.
Lastly was the need to find an office assistant I could
afford, a woman who could be a nurse, a lab and x-ray technician, and a
secretary. A newspaper ad produced
several candidates, one of whom, Pauline, stood out above the rest. A licensed practical nurse, she had done
office work for her husband. She also
had a pleasant personality.
For several days prior to the announced opening date as
printed by our local newspaper Pauline and I organized schedules of painters
and plumbers, electricians, and instrument technicians. Pauline practiced drawing blood from me and
together we performed the basic blood counts and screening chemical tests. I also taught Pauline urine tests; this time
it was her specimen. She also performed
an electrocardiogram on me and on the lawyer in the adjoining office. All that was lacking was a special switch to
activate the x-ray machine, which was promised for the 31st of July.
It was Pauline who answered the phone on the morning of the 31st. “Good morning. Dr. Chamovitz’s office.” It was a woman calling.
“I would appreciate it if the doctor could see me today.”
“Just a moment.”
Placing her palm over the phone’s mouthpiece, Pauline relayed the
request.
I picked up the
phone. “This is Dr. Chamovitz. Can I help you?”
“Why, yes. Yesterday
morning I awoke with one side of my face flat and I believe it’s
paralyzed.”
“How has your health been otherwise?”
“Fine. But I’m really worried.
Can you see me today?”
“Truthfully, we need today to make last minute preparations
but I’ll see you first thing in the morning.
I’m sure you’ll be okay.” I
assumed she had Bell’s palsy for which there was no treatment anyway. (As I write forty-five years later my
attitude appears lackadaisical; were it today, she would have had an immediate
Computerized Tomogram of her brain to rule out a stroke.)
I could hear the disappointment in her voice as I turned her
back to Pauline. I gave it no more
thought except to whisper a “Eureka ! My first patient.”
The following morning Pauline and I donned our new, dazzling
white professional garb, I, a long lab coat, she, a nurse’s uniform. At the appointed hour Pauline ushered in Mrs.
Georgia Lewis, a thirty-nine-year-old housewife dressed in “church-going”
clothes.
I noted the faint sagging of the right side of her face as she
sat in one of the two salmon-colored leather office chairs opposite my
desk. A faint smile further exaggerated
an asymmetry of her face. I posed my
opening question. “Why are you
smiling?” I anticipated compliments for
my office décor or comments regarding my being so young to be a specialist. (After a few years I no longer heard that
latter compliment.)
“Doctor, you won’t believe it but when I looked into the
mirror this morning, I could see that my face was much improved. What do you think of that?”
I should have been delighted. “You fool,” I said to myself. “Look at what a hero you would have been if
you had seen Georgia
yesterday!” Still I tried to reap some
glory out of the situation. “Over the
phone I suspected that your diagnosis would be Bell’s palsy, most often a
self-limiting disease that requires no treatment. That’s why I had no qualms
about delaying your examination one day and why I tried to reassure you that
you would be okay.”
I wasn’t a total scoundrel.
“The truth is that we don’t know everything about this illness except
that it’s probably caused by a virus but why it subsides quickly in some and
very slowly in others, we have no idea.”
With tongue in cheek I added, “Who knows what a positive attitude will
do?” I was shameless.
Without much enthusiasm I proceeded with a history and
physical examination and had Pauline perform the screening lab work. I asked Georgia to report to me in a week and
with that phone call our relationship came to an end.
Well, not quite. I
called her on our “first anniversary” to note the occasion and to inquire as to
her health. “I’m fine and you’re such a
marvelous doctor!” Again, shame on me.
Thursday, October 6, 2011
If I Could Only Have A Hotdog
Clashing wills with a patient
generally calls for a medical divorce.
It would be appropriate for a physician to say, “It’s time I remove
myself from your care and turn you over to another doctor.” In truth in all my years of practice this
never happened. Once it should have but
the patient was my cousin’s wife, Fern.
I loved her; there was just no way I could abandon her.
Fern was only two years older than
I but, having started raising a family eleven years before me, she had played a
senior role in my eyes. Our lives
interlocked in many spheres. She became
one of my wife Marcia’s best friends.
Every year the two spent many hours each day for three months
fine-tuning Broadway musicals that Marcia had adapted to Hadassah themes. For years the three of us sang in the
synagogue choir. We laughed together a
lot and at low points we comforted one another.
My cousin Milton, Fern’s husband,
was one of the most competent public figures I had ever known. In addition to being a superb optometrist, he
was the editor of the prestigious national optometric journal and
simultaneously president of our synagogue, Hopewell Jointure School Board, and
the Beaver County Community College. It
was not unusual for him to have three meetings in one day and chair them all
with aplomb. I obviously admired Milt
greatly, which allows me at this late date to be candid about the disagreement
I will describe. Besides, he’s no longer
around to take umbrage.
Being the physician to family
members is fraught with potential problems, not the least of which, because of
wishful thinking, is the possibility of overlooking significant illnesses. (I can confess to missing my own wife’s
pneumonia though I had enough sense to ask a colleague to examine her; he, in
turn, made the diagnosis and put her on the right tract.)
Therefore it was with some
trepidation that I started my study of dear Fern when she presented with back
pain. From her story I early suspected
that it was not the common garden variety of musculo-skeletal disease. Testing
by means of ultrasound of her abdomen raised the possibility of a tumor of the
pancreas.
With Fern and Milt’s consent, I
referred her to the Presbyterian Hospital in Pittsburgh under the care of my
gastroenterologist brother, Bob. Within
days a surgeon performed an abdominal exploratory operation; the diagnosis was
inoperable cancer of the pancreas. This
carried a death sentence. Occasionally
radiation therapy was used but it really had little to offer. The same was true for the early
chemotherapeutic drugs. Fern would die
within a year.
Bob accompanied the surgeon to the
family waiting room and nodded in agreement as the surgeon spoke to Milt. “I’m sorry.
I have nothing to offer your wife.
No one does.”
Without a moment’s hesitation Milt
took control. “In that case, Bob, can
you get me a key and show me the way to the hospital’s medical library?”
Milt spent the next four hours
researching every entry related to pancreatic cancer. Without any input from Bob or me, Milt made
his decision. He called a “scientist”
doing immunological research on cancer therapy in the Bahamas. Two weeks later he and Fern were on a plane in
search of the “Holy Grail.” At least
that’s how I perceived Milt’s gesture.
Although I did not approve this turn of events – I wasn’t even certain
that the scientist was legitimate – I did not fault Milt; decades later
“immunological research” has become credible and is beginning to impact on
patient care. I trusted that, at least,
Fern would enjoy the tropics.
When Fern’s condition slowly deteriorated,
Milt brought her home. He thereupon
embarked on a variety of therapies scorned by conventional cancer specialists
but nevertheless pursued by what would now be called “alternative medicine”. Their
treatment consisted of injections of worthless Laetrile, high colonic
irrigations, and a very low-protein diet.
Fern went along with Milt’s frantic efforts to prevent the inevitable. Understanding my cousin’s need to do
something, not to stand idly by while his wife was dying, I reluctantly went
along with these charades. Sad to say,
Milt was contemptuous of all offers for counseling that might have helped him
adjust to the somber reality of Fern’s impending death.
I was appalled by Fern’s appearance
when I last visited her at home. Her
voice was weak as she lay in what would soon be her deathbed. She was deeply jaundiced from blockage of her
bile ducts and she was literally just skin and bones. Fortunately she was free of pain. With a whimsical smile she half pleaded with
me, “David, if only I could have a hot dog.”
I resisted going out to buy her one, knowing that Milt was clinging
desperately to the low-protein diet. I
had such an urge to crawl in bed with Fern just to hold and comfort her – and
myself.
Three days later Fern lapsed into a
coma. Milt finally relented, restraining
himself from starting high calorie intravenous infusions. Fern was dead in two more days. Poor Fern.
How she had yearned for mutual consolation with Milt, something Milt
couldn’t handle. And lastly, she had
been denied the opportunity to say goodbye.
I have often wondered if I had sought a replacement
for myself, a physician less emotionally involved, would the situation have
been different? Could Milt have been
brought to appreciate Fern’s need for support with her dying process rather
than being bypassed as he fought her disease?
My lame excuse was that I was certain that none of my colleagues could
have thwarted Milt’s steamroller approach any better than I. Thirty years later I find that stance
untenable.
Saturday, October 1, 2011
Cigarettes or Me
Gloria lay in bed in the surgery ward
recuperating from removal of a lung tumor which to everyone’s surprise was not
malignant. A plastic tube in her stomach
exited through her nose draining yellow liquid into a plastic bag under the
bed. In addition over her nose and mouth
was a transparent mask delivering oxygen.
Gloria’s husband, Philip, sat at her bedside, tears in his eyes, for
endless hours following the operation.
In the ensuing days he remained there except for quick visits home for a
shower and a change of clothing even after the surgeon reassured him that
Gloria was out of danger. Having
witnessed Philip’s quiet crying both before and after Gloria’s surgery and the
outburst of sobbing when I told him that the tumor was benign, I could only
empathize with his terror from the possibility of losing his cherished
wife.
Gloria was tiny with wavy, blond hair, Phil,
tall with thick, gray hair. She was my
patient; both were my personal friends.
Despite all my admonitions, she smoked two to three packs of cigarettes
a day. I pleaded with her, appealing to
her zest for life and to the needs of her four children. Even with a deep cough and worsening
shortness of breath, the threat of severe emphysema had no impact, even less
so, the high risk of lung cancer. She
remained recalcitrant. She mulishly
refused all suggestions for joining support groups that might help break her
addiction.
It was the second day after her surgery. The stomach tube was to be removed. That morning I put my hand on Phil’s
shoulder. “Tell me, Dear Friend, what
can I do for you?”
“Do you have time to talk now?”
“Certainly,” I replied and led him to a
vacant patient room. Philip closed the
door behind him.
“First, tell me,” he started, “how much worse
will Gloria’s breathing be after having had part of a lung removed?”
“That’s an easy one. Probably not at all. We just took out a small lump of tissue,
which hadn’t contributed to her lung function anyway.”
“Okay, Dave, since this tumor was benign,
does that say something about a lower risk of developing lung cancer in the
future?” Both questions validated my
assessment of Phil as a perspicacious scientist – he was a research biochemist.
“I’m almost certain the answer is, ‘No,’ but
I must admit I’ve never considered the question. And certainly if Gloria asks me that
question, I’ll be less equivocal and say that cigarettes caused the first tumor
and that the next one could well be cancer.
Philip hesitated to speak.
“What’s your next question?”
“I don’t know how to say this but sometime in
the next few days, certainly before Gloria is discharged, I intend to deliver
an ultimatum about her smoking. It will
include a threat. I need you only to
tell me when she’ll be strong enough to handle it. And I would feel better if you are there at
the time, if necessary, to pick up the pieces.”
On day six after surgery I told Philip that
he could fire away at his pleasure.
Already after only eight days of a nicotine-free existence plus cool
mist inhalation and chest percussion to facilitate expectoration, Gloria was
less short of breath. At an agreed time
for meeting Philip in her room I sat inconspicuously off to the side. Without a moment’s delay – as if gazing at
her would cause him to back down – Philip lashed out, “Babe, I’m telling you in
all seriousness. You either give up cigarettes
now or I’m leaving you. I refuse to sit
around and watch you kill yourself!”
This time the tears were only in Gloria’s
eyes. “Please, Phil, Dear, don’t do this
to me. I was a smoker when you married
me and you didn’t raise any objection then.”
“Well, thirty years later we know better and
maybe I love you more now than I did then.”
“I’ll switch to the least harmful brands and
I’ll cut down. You’ll see. That will be enough.”
“No.
There is nothing to negotiate.
It’s cigarettes or me!”
“But…”
“No buts.
I’m leaving for the day. Dave is
here if you need him but frankly, I don’t think anyone can help you. I’ll be back tomorrow for your decision. When you are ready to be discharged, I’ll be
here to take you home but if you decide in favor of smoking, my clothes will
already be out of the house. For the
time being you can count on me for financial support but that’s it.” And out he walked.
If ever I had witnessed an example of tough
love, this was it. And in my head as
I waited for Gloria to ask for my help, a calypso song Marcia and I had heard
on our honeymoon was repeating itself in my head; Never interfere with man
or wife – when they’re fighting –. Oh,
just offer sympathy.
Gloria, without looking at me, waved me out
of the room. Had she attempted to
involve me, it might have been another example of a physician failure from
having our families so intimately involved.
She was weeping as I departed.
I visited Gloria at suppertime. She was sitting in a chair picking at the food
on her tray. Her wastebasket was
overflowing with soggy Kleenex. “I don’t
have a choice, do I, Dave?”
“How can I possibly advise you when it would
devistate Marcia and me if you and Phil split up? With that off my chest, yes, you do have a
choice. In either direction I will
remain your doctor though I can’t tell you how many times, like Philip, I’ve
wanted to threaten to abandon patients who would not give up smoking. Maybe I should have but none loved me as much
as you love Phil.”
I paused.
“But I promise you I’ll involve whatever physician and lay experts who
can help you overcome your nicotine addiction.”
Gloria’s sobbing was now audible.
Again she dismissed me.
She met Phil at the door the following
morning. She hugged him and with her
head buried into his chest, she wailed, “Don’t leave me, Phil. I’ll try.
Honestly I will. But stay with me
while I try. You’ll be proud of me. Please don’t leave me.” All the nurses in the unit heard every
word. There were few dry eyes, mine
included.
“Okay, Babe.
You’ve got a deal. We’re a couple
and I do believe we’ll remain a couple.
I know you can do it.”
The two lovebirds left the hospital smiling,
handing out trinkets to all the personnel.
I visited Gloria at home two days later.
To everyone’s amazement she had no craving for a smoke and her breathing
was appreciably improved. I wish I could
say that it was smooth sailing thereafter.
Hardly.
That night I was called to the hospital
Emergency Room. Gloria had arrived by
ambulance. Philip was in hysterics. Gloria had awakened complaining of severe
chest pain. She gasped for breath. Phil called 911. After six or seven minutes the ambulance
attendants arrived and administered oxygen.
Gloria’s breathing eased minimally.
In the hospital emergency room an electrocardiogram showed no evidence
of a heart attack but suggested blood clots in the lungs. An emergency radioisotope lung scan confirmed
the diagnosis. Anticoagulant treatment
was started.
Philip confronted me. “What could have happened? She was doing so well. She was great.”
“All I can say, Phil, is that pulmonary
emboli is one of the dreaded complications of any major operation. The longer the surgery and the longer the
period of inactivity, the greater the risk of developing blood clots in the
legs which break lose and end up in the lungs.”
I didn’t add that it also occurs more often among smokers; Phil already
had enough reasons for hating the weed.
Gloria’s course was stormy. After a second episode of new clots in her
lungs, she underwent an operation on the large vein in her abdomen to block
further clots from traveling to her lungs.
It took another three weeks until she could be discharged and a further
two months until her breathing and stamina were normal. If Philip’s threat wasn’t enough reason to
continue off cigarettes, certainly the assault on her life was.
Gloria lived another twenty-six years filling
her life with good deeds for many community organizations as well as caring for
her numerous grandchildren, including at age seventy-eight, taking a teenaged
grandson on the Space Mountain roller coaster at Disney World; the trip was her
reward for his giving up cigarettes. A
year before her own demise she buried Phil, the love of her life and the giver
of her own extended stay on this earth.
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